Living with Cystic Fibrosis

(WTNH) -- Greta Bogaert Bylo of North Haven is about to get on a list for a lung transplant. She has Cystic Fibrosis. Now in her late 40's, she has lived with CF since she was 6 years old.

This mother of four talked to me as she waits for a life-saving surgery that could come at any time.  In this video clip you will hear Greta's oxygen as she speaks.

"When I grew up there wasn't a lot of information. I didn't understand growing up. I wasn't sure about my future, or how long I would live, or when I would get certain ailments of the disease. And I find that information is the best. To know more is better. So I've researched and I've studied and I've learned along the way."

She has connected with people all over the world.

"Oh yeah, through the Internet. Now it's a great thing, because you can talk to somebody in Australia and converse about their disease and help them go through some of the things that I've been through.

What are her best pieces of advice for children who've been diagnosed with this, for families and that have been diagnosed with CF?

"See your doctor regularly; follow the instructions, they know best; and the best thing that my Mom always did and my Dad was encourage me to do what a normal child would do ... I climbed trees, I skied, I swam, I did gymnastics\ -- the more normal and the more active you can keep a child's life, the better."

Greta is truly a model for others, living life to its fullest and continually helping others. we are pulling for her that someday soon she will able to take in fresh air on her own and live a more normal life.