NEW HAVEN, Conn. (WTNH) -- A little known degenerative neuro-muscular disease is getting a lot of attention from Governor Malloy.
This week, he proclaimed September as CMT awareness month.
At a glance, Michele Kekac appears to be a picture of health.
"We say the CMT is the biggest disease no one has ever heard of," Kekac said.
Kekac has CMT, Charcot-Marie Tooth, which at the start is an invisible progressive degenerative disorder.
It is now more visible with Kekac.
"I had a lot of Charley horses on my calves and eventually I started to have extreme fatigue," said Kekac.
"Go on me and push down," said Dr. Dan DiCapua, "that's a little weak there, a little weak there."
Neurologist Dr. Dan DiCapua at Yale-New Haven Hospital monitors Kekac closely.
There is no cure or treatment, but doctors know it is genetic.
"Once it is established and diagnosed in a family member, usually subsequent family members are diagnosed," said Dr. DiCapua.
To raise money for more research Kekac is organizing a benefit: a "Slice of Hope for CMT" next month in Shelton.
For more information on the benefit, visit the Slice of Hope for CMT Facebook page.
Police have identified a man who was shot in the head in New Haven Thursday, and was originally misidentified because of a fake ID in his possession.
Farmington police say an officer shot and killed a man while responding to a fight between a father and his adult son.
The treasurer of the Milford Rotary Club has been arrested on larceny charges on accusations he embezzled more than $200,000 from the Milford Rotary and two other groups.
The state Democratic Party is returning a $10,000 contribution from the chief executive of Comcast-Spectacor and owner of the Philadelphia Flyers, saying it has learned he could be a state contractor.
West Haven officials say state plans to eliminate Exit 44 on Interstate 95 south will make it harder for the city to attract business.
Residents make sure to gas up your vehicles and buy any basic necessities today, as some may see nearly a foot of snow in this weekend's storm.
For residents looking for tips on how to prepare and stay safe during a weather-related emergency, the state has a Guide to Emergency Preparedness.
A Stamford man convicted of attempted murder after he unknowingly hired an undercover police officer as a hit man to kill his wife has been sentenced to 15 years in prison.
Every week we take a moment to look back at the last week using your pictures and video. This past week, we got a lot of pictures of the season's first 'measurable' snowfall.
While many are looking ahead to the weekend snow storm, this morning we're waking up to the coldest air of the season.